Endometriosis is a full-body disease

In the months since my surgery, I’ve been “diagnosed” with two other chronic ailments.

Adenomyosis, which I discussed in a previous post, and interstitial cystitis, a painful bladder condition that also increases my need to go number one.

I use the quotes on diagnosed because both of these condition, much like endo, require some work to actually (officially) make a proper diagnosis. To diagnose adenomyosis, I’d need to have a doctor look at my uterus outside my body. Yeah, I’d have to get a hysterectomy. For IC, a different doctor has to perform a cystoscopy to view the inside lining of my bladder. (I had a cystoscopy last week but I have not had the diagnosis or results of the procedure revealed to me).

Research shows that IC, as well as a multitude of other conditions, are closely related to endo in that women who suffer from endo tend to also need treatment for these conditions. My endo surgeon removed a lot of endo from one of my ureters – a tube that carries urine from the kidneys to the bladder). Could this be why I am having issues with frequent urinary tract infections, pain in my bladder and the constant need to go pee?

A number of foods trigger my endo symptoms, as well as my IC symptoms and I have been trying to be more conscientious of what those are. For example, I know that drinking large amounts of coffee can cause pain in my bladder. Same goes for spicy foods and alcohol. All of these foods, plus wheat, dairy and red meat make me feel sick and cause my endo to just explode. It’s quite sad. really.

I regret taking for granted those days I could eat whatever all day long and not worry about bloat, nausea and bouts of pain for the next several days.

Recently, I began having an awful pain in my pelvis. In my uterus. I know it’s my uterus because I remember the horrific pain that was the Mirena insertion. The pain is in that spot. So I know, it’s the Mirena.

Since I started the Mirena, I’ve noticed a 180-change in my mood. I’m more anxious, nervous and foggy. I’ve gained weight, in spite of me meal prepping my breakfast, lunch and dinners for seven days out and in spite of me working out three to four times a week. The only thing that has changed in a month or so is the Mirena insertion. The Mirena was meant to help alleviate my adeno symptoms, which I feel it has failed to do. The side effects are not worth any relief I might have felt down the road.

On Friday, I have an emergency appointment with my Nook surgeon and I’m going to ask him to remove it. It’s the only thing I can think to do. Then I guess, I’ll go back on my regularly scheduled Nuva Ring. I never huge had issues with that.

4 thoughts on “Endometriosis is a full-body disease

      1. Probably best you’re getting it removed then. It’s so frustrating when something’s supposed to help you and it makes everything worse instead

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