My life with endometriosis

Endometriosis has been a part of my life for as long as I’ve had a menstrual cycle. The debilitating pain. The excessive bleeding. The weeks-long periods that got progressively worse as I aged.

But for many years, I didn’t know that the symptoms I was experiencing were actually the chronic illness endometriosis.

For about 15 years, I lived with the pain, the shame and the lack of closure about what was ailing me.

In 2014 the pain got so bad, intercourse left me drained, my abdomen swollen and nearly in tears. It hurt to have a bowel moving.  I began noticing hormonal side affects. My face broke out. My stomach would swell to where I’d look pregnant for days. Cravings were off the charts.

I started doing research and self-diagnosed myself with endometriosis. My symptoms matched.

In 2016, I was under the surgeon’s knife for the first time. Of course, he couldn’t tell me for sure that what I was experiencing was endometriosis until he cut into me.

I just wanted it out.

Before the surgery, he warned me that he was not an expert or specialist in endometriosis or excision. He told me I could wait until I found a doctor with more expertise and that he would continue providing my well-woman exams.

At the time, I was living in Hawaii for my job and away from family and friends. I just wanted the pain gone as fast as possible.

It was a mistake.

He used a laser to cauterize lesions in my abdomen and I was never clear exactly how much endo he found, what all he did and what level of endo I had. I’ve since requested medical records.

I just know that following the surgery the pain didn’t go away. In some areas, it got worse. In others, I got some relief.

More than a year later, I’m prepping for my second endo surgery this time with a specialist in Houston. I’ve since moved back to Texas and am surrounded by my family and friends.

I started this blog to share my experiences about endometriosis… Please feel free to reach out to me or share your experiences with me.

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